Over a year after the NIH received $1 billion to study Long COVID, the agency’s flagship study is floundering and frustrating patient advocates. Here are five reasons why Long COVID research is tough in the U.S., taken from my reporting for a recent Grid story.
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Though it’s now been well over a year since the first Long COVID patients were infected, there is still so much we don’t know about the condition. For example, we don’t know a very rudimentary number: how many people in the U.S. are struggling with Long COVID. We also don’t have a clear, detailed picture of Long COVID symptoms, or how these symptoms arise from a coronavirus infection, or how they impact the daily lives of Long COVID patients.
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